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Wednesday, June 5, 2013

I have been loaded down with doctors appointments galore and I'm not looking forward to what might be coming our way.

Our sweetheart, Amanda, is having some serious problems. We have been working with an orthopedist for over two years now keeping an eye on Amanda's scoliosis. The doctor never felt surgery was 100% necessary and knowing the stress the surgery would cause Amanda...I let it go. Well, Amanda's scoliosis is now progressed to a 73 degree angle. Surgery now needs to be done.

But that's not the big problem. A pre-operative MRI revealed something that made our hearts sink. Amanda has a Chiari malformation with syringomyelia (check out asap.org). What those words mean is her brain is herniating out the back of her skull and fluid is building up in her spinal cord.

Tomorrow, Amanda is going to have another MRI done. Her neurosurgeon will then decide what needs to be done. I will update as I'm able. Please pray.

Annabelle is doing wonderfully!!! She is healthy and happy!!! Teletubbies are her favorite. :) She's a big girl who no longer needs diapers and is learning new things everyday. I'm absolutely convinced that if Annabelle would of grown up in a family from the very beginning she would be of normal to near normal intelligence.

5 comments:

  1. Glad to hear from you, friend. Praying for your Amanda. Please let me know if you need anything at all - you know it's only a couple hours' drive!

    ReplyDelete
  2. I will be praying for Amanda and your entire family!

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  3. I will be praying for Amanda and your family.

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  4. praying for you and your Amanda. I have friends whose daughter had the surgery to correct her Chairi formation about 3 months ago. If you would like to be connected to them please message me on facebook. Anna Dietrich Keyzer

    blessings on your family.

    ReplyDelete

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We're your average family. No fame or riches. We have our ups and downs. When it rains it pours but we always view the glass as half full. We go where our Lord and Savior, Jesus Christ leads. We aren't perfect but we always try to do our best.

Annabelle. The one born in our hearts.

Kandice. Our artistic one.

Amanda. Our helpful one.

Keegan. Our curious one.

Jacob. Our sensitive one.

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